How to set up a Budd-Chiari Foundation?

Another goal I had set for myself this year was to create a non-profit organization/foundation to benefit Budd-Chiari research. I haven't been able to do much research, so in hopes of alleviating some of my workload, has anyone of you created a non-profit organization/foundation before? Or know of where to start and please don't say Google =).

Please contact me by clicking on my name and Send A Message. Thanks!